Dear parents and friends,

As you may know, former student Nathan LeBlanc, who passed away suddenly this spring, had Dravet Syndrome.

Dravet Syndrome is a rare and catastrophic form of epilepsy. Children with Dravet Syndrome do not outgrow this condition and there is no cure. It affects every aspect of their lives – frequent seizure, developmental and physical delays, and they face a higher incidence of SUDEP (sudden unexplained death in epilepsy).

June 23 is the third annual Dravet Syndrome Awareness Day. We invite our staff and children to wear something purple in recognition of the day.

Our centre is holding a charity drive, Dimes for Dravet, for the month of June. Each day for the month of June, we encourage you to bring in coins to donate to the cause, and drop them in the donation jar in our lobby.

All coins must be turned in by June 29.

Remember that every coin gets us closer to a CURE!

Sincerely,

Heather Cochrane

Acting Director

For more information on Dravet Syndrome, please visit:

To read more about Nathan and his family’s efforts to raise awareness of Dravet Syndrome, please read this June 2016 article by local newspaper, the Hants Journal.

About the Dravet Syndrome Foundation

Taken from dravetfoundation.org: The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies, while providing support to affected individuals and their families. In accordance with our mission, DSF focuses its work and funding in four areas: Research Grant Awards; Annual Research Roundtable; Patient Registry; and Patient Assistance Grants. DSF is a nonprofit organization founded in Connecticut in 2009 by a group of parents with the purpose of expediting research to find a cure and better treatments for their afflicted children. Since its inception, the DSF has awarded over $1M in Dravet-specific research grants. To learn more about Dravet syndrome or our foundation and its programs, visit our website: www.dravetfoundation.org